September 8, 2011

Urinal Reflux & Kidney Stuff

I talked to our Urologist’s nurse yesterday to find out if we should have been collecting Kinsley’s urine in the hat. We have been using this white “hat” that can be latched into place on the toilet so we could collect Kinsley’s urine with ease. (Those urine cups are too small!)

I started thinking about the whole “clean catch” concept and it got me thinking about whether or not we had been collecting her urine properly. It turns out that collecting her urine right from the get go in the hat is fine as long as we were wiping her from front to back with the wet wipe. (We were!)

She went on to explain that older ladies use the hat as do younger girls and that it’s completely fine to collect the urine in the hat. It makes things easy on everyone. She also said that it would not have made a difference what they were seeing in Kinsley’s urine sample.

I asked her if she thought Children’s Hospital would let us both be in the room with Kinsley when she has her Renal Ultrasound and VCUG. She seemed to think that they would only let one of us go back there. If that’s the case I can tell you that it’s going to be hard trying to decide who will go back with Kinsley. I would imagine we will let her choose who she wants to go back with her.

I’m actually going to call the Radiology department at Children’s Hospital to ask more questions about this renal ultrasound and to find out what the deal is with who can be in the room with Kinsley during the VCUG. When it comes to this sort of thing I need to hear it from the horse’s mouth how things are going to go down.

I did ask the Urologist’s nurse if there was anything that they can give Kinsley to take the edge off because this VCUG she has to go through is not going to be pleasant. I shudder just thinking about it. The other day I was discussing it with my girlfriend and thinking about it made me feel like I was going to faint or pass out. Poor Kinsley! She did tell me they have some sort of numbing gel that they may opt to use. I hope so!

If Kinsley winds up having this urinal reflux to her kidneys we will see how severe it is. Apparently if it’s not too bad sometimes kids can grow out of it but it requires monitoring. From what my girlfriend was telling me there are also medicines with lots of side effects that can help but apparently we don’t want Kinsley to have to take those for too long. Then there is surgery if it winds up being bad. The surgery is even more invasive than the VCUG test.

I am hoping and praying that Kinsley doesn’t have urinal reflux at all. My girlfriend was telling me that 33% of siblings who have this issue wind up having the same thing so I would imagine we will have to get some urine samples from Fiona to make sure she doesn’t have this problem. If Kinsley does wind up having urinal reflux to her kidneys I hope and pray it’s low grade so that she doesn’t have to have surgery.

2 comments:

  1. Thanks for keeping us posted. Thinking and wishing the BEST for everyone!!

    It does sound like it's a procedure with physical pain involved, but please remember that the expectation, the NOT knowing is at times harder than the experience itself. And as you said, "until you hear it from the horse's mouth" there is no need to make projections, either negative nor overly rosy. One day at a time.

    On a side note: I take medications on a daily basis and sometimes it is really irritating to do so. I "jolt" myself out of this spoiled attitude and tell myself "Be grateful that you have healthcare" and can now afford my meds. I was out of work for two years and my meds are very expensive. Not taking them would devolve into a life threatening situation. My doctor was an angel and provided me with samples she got at her office. I shudder to think what would have happened otherwise.

    *hugs*

    Rachel

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  2. Thanks Rachel. It will be good to find out why these UTIs are not going away. I hope and pray that Kinsley doesn’t have urinal reflux and that her kidneys are fine.

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Thanks for the comment